I realized I hadn’t really updated this since my hospital stay that ended about a week ago. I’ve spent the week pretty much homebound in my apartment. And if you know me at all, having to do that is more painful than all the needles I endure in my hospital visits. Wait. I take that back. Just as painful. Because I really hate needles. But I like being able to do things. I haven’t even really done much on my computer, letting correspondence, social media, and yes, even my coding work, just sort of…lapse.
I was finally feeling a little better on Thursday, but a simple blood test turned into a bureaucratic quest from hell. I believe it would have exhausted someone at full energy, and for someone with anemia, still recovering from a 4-day hospital stay, it knocked me back a few more pegs.
But some calls from friends Saturday afternoon perked me back up a little bit, and a visit from a dear friend who recently moved to the area made me feel much more alive, and just better. Thanks, Heather!
Today (Sunday) for Father’s Day, Dad (who’s staying with me) and I decided we needed to get out of the apartment for our own sanity, and also to do something somewhat celebratory. We went to the Georgetown Flea Market, and did some kitchen shopping. It was far from my normal. Going up a flight of stairs from the market to the car left me almost collapsing at the top, and it wasn’t that strenuous. We drove everywhere, whereas I would normally take the subway. And by the time we got back, my legs were SO tired. We didn’t even walk that much. But it was great psychologically.
I feel like I can start working from home, at least, again. However, I have tons of bureaucratic stuff to get in order for Georgetown, and I think dealing with it is going to exhaust me. Delaying my return to work a bit more. This is not what I want. This will be followed by three doctors’ appointments Wed, Thurs and Fri, and then next Tuesday, I fly back to Chicago for treatment No. 3.
Dad and I joke that I’ll feel better just in time to fly in for the treatment, and we’ll start this process all over.
The kidney disease numbers continue to improve, so I keep telling myself it’s all worth it.
And now, my hair has started to fall out. It’s not really noticeable, but when I dry, and brush my hair through it,more than a strand at a time is coming off in my hand. Which is just shocking to me, more than anything else. They did say my hair might thin, and I start off with pretty thick hair, so I’m hoping to weather it.
But things are moving along, and I’m still in pretty high spirits — considering everything that’s going on.
I guess I’ll end by saying having Dad here has been a real help, running errands when I can’t, picking things up so I don’t get dizzy, having someone to talk about all this with, etc. I don’t know what I’d do without my parents’ no-questions-asked support. And I know my mom would be here if she could (she just got out of physical rehab and is still recovering from a hip replacement.) I can’t think of a more fitting day than Father’s Day to let both my parents know just how much I appreciate them.